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brainstrust launches the Brain Tumour Hub
Brain Tumour Awareness Month – March 2011
23 February 2011

brainstrust, the Meg Jones brain cancer charity, is launching its latest pioneering initiative, the Brain Tumour Hub, on 1 March 2011 to coincide with Brain Tumour Awareness Month in the UK where 8,600 new cases of primary brain tumour are diagnosed every year. The Brain Tumour Hub is the only authoritative online national database of brain tumour services available to brain tumour patients. It has been developed with the input of patients and with the support of leading neuro healthcare professionals.

brainstrust director, Helen Bulbeck, said: “A common theme that has emerged from our daily interactions with brain tumour patients, their carers and healthcare professionals is that patients and carers often feel uncertain as to whether they have ‘turned every stone’ in their search for the best brain tumour support. We also know that there is currently no dedicated tool or resource that offers a national picture of what is available to brain tumour patients and carers outside of their local area. Currently, patients and/or their carers spend hours trawling the internet for information, not all of it correct.

“Our aim with the Brain Tumour Hub is to help brain tumour patients and carers ‘turn every stone’ quickly and easily in their search for the best brain tumour support and advice. It is easy to navigate with a simple postcode search facility and translates into an offline tool with options to download and print out results. Indeed, through filtering their results, users will be able to create their own personalised support services contact list.

“Once we have attracted additional funding, we will develop the database further to incorporate information on treatment avenues and clinical trials which will then make the Brain Tumour Hub the only authoritative national database of brain tumour support services, treatment avenues and clinical trials available to brain tumour patients.

“The Brain Tumour Hub represents our latest initiative to do more to provide solutions for people with brain tumours and provide better patient support along the clinical pathway. It empowers people with a brain tumour to fight this devastating disease.”

The go live date for the Brain Tumour Hub, at www.braintumourhub.org.uk, is 1 March 2011.

brainstrust is an active member of the Brain Tumour Research Group.

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